In our February 26th Coffee with a Cause Lisa Basford, founder of Good Endeavours, will lead members in working with Jane Green, founder of SEDSConnective, to help to grow their charity to bring holistic support to neurodivergent people with complex health needs.
SEDSConnective is a voluntary and user-led charity based in Sussex with global reach providing voice and support for people with symptomatic hypermobility and evidenced neurodivergence (Autism, ADHD, Dyspraxia and Tourette’s +). They believe in a whole person approach and focus on promoting awareness and enhancing the quality of life for their community in education, health, social care, employment, and travel accessibility.
In the session we will work together with Jane on their business plan for growing the charity to create a more resilient model that can connect with and support even more members.
Jane Green was motivated to start SEDSConnective after facing years of mistrust in her own conditions. She is disabled and neurodivergent, as well as a carer for her eldest child who is also neurodivergent. Due to the late diagnosis of her conditions, she faced challenges throughout her social life, professional life, and above all, in maintaining financial equity. Jane always felt that there must be others who had symptomatic hypermobility and were also neurodivergent.
Jane founded SEDSConnective in 2018, in Sussex, UK. It started as a voluntary charity without funding, with no particular connections, but with a strong conviction that people who are neurdivergent need better medical advice and support for their whole person, rather than just the label of being ‘autistic’ or ‘dyslexic’.
Today SEDSConnective is a charity with global reach and over 5,000 members. They have remained true to Jane's original aims and have become a collective of people learning from and supporting each other. They also collaborate with other charities and work to educate medical professionals about the prevalence of symptomatic hypermobility for people who are neurodivergent.